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Sunday, April 20, 2014

Have a blessed Easter! 


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Friday, April 04, 2014

Inspiration for the Day, April 4, 2014: 

A PRAYER IN SPRING
BY ROBERT FROST

Oh, give us pleasure in the flowers to-day; 
And give us not to think so far away 
As the uncertain harvest; keep us here 
All simply in the springing of the year. 

Oh, give us pleasure in the orchard white,
Like nothing else by day, like ghosts by night; 
And make us happy in the happy bees, 
The swarm dilating round the perfect trees. 

And make us happy in the darting bird 
That suddenly above the bees is heard,
The meteor that thrusts in with needle bill, 
And off a blossom in mid air stands still. 

For this is love and nothing else is love, 
The which it is reserved for God above 
To sanctify to what far ends He will,
But which it only needs that we fulfill. 

Saturday, February 08, 2014

Fibromyalgia: more than just hurting.... 

People with fibromyalgia compare symptoms all the time, and no two of us share all the exact same symptoms. But I always wondered which ones were the most common, something addressed in this poll:

OHSU/NFMCPA Survey of Symptoms Other than Pain for FDA Meeting Part 1

I was truly shocked by the number of people in the poll who cannot work at all. I had always been led to believe it was unusual to be so sick as to be disabled. It's still pretty difficult to be approved for Social Security Disability Insurance, though.

The world is coming around ever so slowly.... 

Thought I'd share something a little more recent. Got this in a newsletter a few days ago:

Fibromyalgia: The Stigma and the Truth

I know the "people with fibromyalgia are lazy" comments still go around, mostly online or in the media because I'm don't see that many people face to face. But I hope we are finally moving in the right direction with proper research getting closer to discovering the cause.

Thursday, February 06, 2014

More good news for celiacs.... 

Have had this sitting on my browser since September. Thought it was important enough to share:

New FDA Gluten-Free Label Rules Include Dietary Supplements

My experience with supplements, at least with the higher quality ones, is that most of them already have gluten information on the label. But it is comforting to know that now it will be required. People with celiac disease, especially those recently diagnosed, often have nutritional deficiencies caused by their ailment, and supplements such as calcium can be essential.

Monday, January 20, 2014

Inspiration for the Day, January 20, 2014: 

"When I speak of love I am not speaking of some sentimental and weak response. I am speaking of that force which all of the great religions have seen as the supreme unifying principle of life. Love is somehow the key that unlocks the door to ultimate reality."

- Martin Luther King, Jr.

Wednesday, January 15, 2014

The media's impaired....by lack of sense..... 

Came across this whilst intending to do something else (I forget what). I guess the perception of disability in Australia has as many controversies as it does in the States:

It's the lack of a permit, NOT that they don't 'appear' disabled.

Certainly, I've seen abuses of the disabled parking spaces, like when a drug rep uses one so she doesn't have to wheel her little suitcases of samples very far, or when a monster pickup is parked on the wheelchair grid and with the engine running so the driver won't be inconvenienced by having to start it up again. Neither of those inconsiderate people was using a permit, and they had taken the last available handicapped spaces so that I was out of luck. But then again, I know people who really should be getting a permit because they are legitimately disabled, but they are so fearful of confrontation by healthy folks that they forego the placard and either have to hike in from the far end of the lot or just not go anywhere because they can't handle the extra walking involved. Remember, disability can happen at any age to anyone.

Wednesday, January 01, 2014

Here comes 2014.... 


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