Wednesday, March 09, 2005
Complaints and kudos....
I believe my gastroparesis is getting worse. I'm nauseous more and more of the time, and last night, seven and a half hours after I'd had gluten-free waffles with peanut butter on them, I started throwing up. I'd digested the waffles, but not the peanut butter.
I have an appointment with the gastroenterologist's assistant on Friday, which is a good thing because I still feel extremely queasy. I don't think there's a lot they can do, but I just want to make sure it's not something else. Yuck.
I've been on Neurontin for periodic limb movement disorder for two months now, and it's still not helping. I don't think at this point that it's going to. I called the sleep specialist's office and left a message asking what I should do next.
Oh, and of course the scenario would not be complete without a migraine. Like Gilda Radner used to say, "It's always something."
So I feel quite dreadful, and am actually worse now than when I first started short-term leave from work five and a half weeks ago. How I'm going to get back to work I have no idea. Frustrating.
Thus ends the litany of complaints. On to more positive stuff:
Yesterday was the first ever meeting of the Denver members of But You Don't Look Sick. We met at Dr. Karen's house, which was no small thing for her to arrange. There were six of us camped out in her living room if you count Karen herself. And she has celiac, so everything she had for us to eat was gluten free, including fresh coffee cake! And the blueberry green tea she made for me was delicious. There were even three poodles present for us to pet.
I managed to screw around and get myself lost and of course was late, no surprise to those who know me. So I had to ask everyone to re-introduce themselves, which they were nice enough to do, and zipped through my own Reader's Digest condensed intro. Then we each mentioned what we hoped to accomplish in the meetings.
We're gonna do this on a regular basis, once a month. Next time, I will try scribbling down ideas as we go along so I won't have to blurt them out for fear of forgetting them and cutting someone else off in the process. I might also bring in books I think the others might have an interest in.
Afterward, I went to a health food store near Dr. Karen's house that she had told me about. This was a mom & pop type with a lot of gluten-free foods that I hadn't seen anywhere else, including fresh bakery products. I bought two chocolate chip cookies, the first ones I'd had in a year and a half, and was amazed to discover I could hardly tell them from ones containing wheat! I might go back there next week when I have to go to that part of town for my allergy shot.
Ack. There was a lot more I wanted to put in here, but I fear if I don't sign off, I'm either going to hurl or my head is going to explode.
Pain level: 9
Fatigue: 9
I have an appointment with the gastroenterologist's assistant on Friday, which is a good thing because I still feel extremely queasy. I don't think there's a lot they can do, but I just want to make sure it's not something else. Yuck.
I've been on Neurontin for periodic limb movement disorder for two months now, and it's still not helping. I don't think at this point that it's going to. I called the sleep specialist's office and left a message asking what I should do next.
Oh, and of course the scenario would not be complete without a migraine. Like Gilda Radner used to say, "It's always something."
So I feel quite dreadful, and am actually worse now than when I first started short-term leave from work five and a half weeks ago. How I'm going to get back to work I have no idea. Frustrating.
Thus ends the litany of complaints. On to more positive stuff:
Yesterday was the first ever meeting of the Denver members of But You Don't Look Sick. We met at Dr. Karen's house, which was no small thing for her to arrange. There were six of us camped out in her living room if you count Karen herself. And she has celiac, so everything she had for us to eat was gluten free, including fresh coffee cake! And the blueberry green tea she made for me was delicious. There were even three poodles present for us to pet.
I managed to screw around and get myself lost and of course was late, no surprise to those who know me. So I had to ask everyone to re-introduce themselves, which they were nice enough to do, and zipped through my own Reader's Digest condensed intro. Then we each mentioned what we hoped to accomplish in the meetings.
We're gonna do this on a regular basis, once a month. Next time, I will try scribbling down ideas as we go along so I won't have to blurt them out for fear of forgetting them and cutting someone else off in the process. I might also bring in books I think the others might have an interest in.
Afterward, I went to a health food store near Dr. Karen's house that she had told me about. This was a mom & pop type with a lot of gluten-free foods that I hadn't seen anywhere else, including fresh bakery products. I bought two chocolate chip cookies, the first ones I'd had in a year and a half, and was amazed to discover I could hardly tell them from ones containing wheat! I might go back there next week when I have to go to that part of town for my allergy shot.
Ack. There was a lot more I wanted to put in here, but I fear if I don't sign off, I'm either going to hurl or my head is going to explode.
Pain level: 9
Fatigue: 9
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