Monday, June 14, 2010
New Sjogren's site....
Got this link from the Sjogren's Syndrome Foundation. This site has been up and running since April, with more improvements to come:
Living With Dryness
I do wish this site covered extra-glandular (beyond dry eyes and mouth) involvement more in-depth. But I think this is intended more as a starting point for those newly diagnosed and those wanting more info on dry eyes and mouth, which is cool. I tried to download the results of a survey they did of Sjogren's patients, but it didn't work due to my outdated software. I did find links in their Resources section to two Sjogren's forums that were to me, so I am pleased about that.
Living With Dryness
I do wish this site covered extra-glandular (beyond dry eyes and mouth) involvement more in-depth. But I think this is intended more as a starting point for those newly diagnosed and those wanting more info on dry eyes and mouth, which is cool. I tried to download the results of a survey they did of Sjogren's patients, but it didn't work due to my outdated software. I did find links in their Resources section to two Sjogren's forums that were to me, so I am pleased about that.
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