Wednesday, October 24, 2012
Just about everything you might want to know about ME....
This appeared on a fibromyalgia Facebook page weeks ago, but it took me quite some time to read it all. Technical in places, but worth sorting through, and it contains valuable and fascinating info:
The Lived Experience of Severe Myalgic Encephalomyelitis (ME)
If you can't get through the whole thing, at least check out the sections toward the top that show a link between ME and autoimmune conditions like Sjogren's syndrome, MS and others. Also, toward the end is an excellent summary of international reactions to the efficacy of graded exercise therapy (GET) and cognitive behavioral therapy. Basically, GET has been found to cause an alarmingly high rate of relapse, and CBT is completely ineffectual because ME is NOT a psychiatric disorder.
The Lived Experience of Severe Myalgic Encephalomyelitis (ME)
If you can't get through the whole thing, at least check out the sections toward the top that show a link between ME and autoimmune conditions like Sjogren's syndrome, MS and others. Also, toward the end is an excellent summary of international reactions to the efficacy of graded exercise therapy (GET) and cognitive behavioral therapy. Basically, GET has been found to cause an alarmingly high rate of relapse, and CBT is completely ineffectual because ME is NOT a psychiatric disorder.
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